If you have 5-10 minutes, please fill out the latest survey (Patient Experiences Survey): https://docs.google.com/forms/d/e/1FAIpQLSchmUvj90M8dJdSyUhQcEboBjCa-Sw9BDbY5msC6H7muBJXYw/viewform?usp=pp_url&entry.1840324711=LongHaulWiki+Odysee
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Presentation slides: https://longhaulwiki.com/resources/assets/What-worked-Feb-16-2023.pdf
Survey results data dump: https://longhaulwiki.com/treatment-outcomes/2022-11-26-living-survey-b.html
*That webpage has a link to the original survey used to generate the data in this video.
**DISCLAIMER**: All opinions are my own. They do not represent the views of any organization.
Committed to a psych ward for 20 years because his doctors didn't listen. These are stories about medical failures.
Reddit links:
https://www.reddit.com/r/medicine/comments/14sji2u/first_major_survey_of_doctors_with_long_covid/
https://www.reddit.com/r/medicine/comments/x0y4m8/long_covid/
https://www.reddit.com/r/medicine/comments/qsbav1/a_new_study_finds_that_most_long_covid_symptoms/
List of doctors and support groups (spreadsheet): https://docs.google.com/spreadsheets/d/1FfUNWtgETTXCaZ_vAi7XSq6WS5qBwoSxgIGUMAWxOK0/edit?usp=sharing
Presentation slides: https://longhaulwiki.com/resources/assets/Start-Here-Guide-for-COVID-Vaccine-Injury-October-14-2022.pdf
Wiki: https://www.LongHaulWiki.com
Persistent Symptoms Survey #2: https://web.archive.org/web/20221116235817/https://react19.org/wp-content/uploads/2022/05/React19-Persistent-Symptoms-Survey-2-Highlights.pdf
**DISCLAIMER: All opinions are my own. They do not represent the views of any organization.**
Slides:
https://longhaulwiki.com/resources/assets/The-Patient-Experiences-Protocol-v1.pdf
**DISCLAIMER**: All opinions are my own. They do not represent the views of any organization.
For a deep dive into the similarities between ME/CFS, Long COVID, and another long haul syndrome, please see https://forum.sickandabandoned.com/t/long-covid-me-cfs-and-post-vax-may-be-the-same-multi-symptom-syndrome/369/3
Pacing strategies: https://www.facebook.com/DysautonomiaInternational/photos/a.335327843232768/947275792037967/
HBOT primer: https://forum.sickandabandoned.com/t/in-case-you-missed-it-hbot-is-the-most-proven-treatment-for-long-covid/190
HBOT RCT paper: https://doi.org/10.1038/s41598-022-15565-0
Depaul University survey: https://doi.org/10.1080/21641846.2021.1922140
David Marks Figure 2: https://doi.org/10.3390/biomedicines11010180
Dianna Cowern (PhysicsGirl): https://www.instagram.com/thephysicsgirl/ and https://www.youtube.com/@physicsgirl
Jessica Taylor-Bearman: https://www.instagram.com/jayletay/
00:00 Intro
00:24 Data
00:46 Treatment implications
Slides:
https://longhaulwiki.com/resources/assets/COVID-vaccines-in-chronic-illness-Jan-11-2023.pdf
**DISCLAIMER**: All opinions are my own. They do not represent the views of any organization.
The dirty secrets of the medical science world.
John Ioannidis on Why most clinical research is not useful: https://youtu.be/Uok-7NPFn4k
Veritasium / Is Most Published Research Wrong? Yes.: https://youtu.be/42QuXLucH3Q?si=HzAY5SuPf8v8mqsC
Long Haul Wiki list of approaches: https://www.longhaulwiki.com/index.php/List_of_doctors_and_approaches
Phyto-V paper: https://doi.org/10.3390/covid2040031
Keep-healthy.com website snapshot: https://archive.ph/rUPK5
Microclots version 1 pre-print: https://doi.org/10.21203/rs.3.rs-1205453/v1
Microclots version 2 pre-print: https://doi.org/10.21203/rs.3.rs-1205453/v2
0:00 Intro
1:06 How I figured it out
1:54 Conflicts of interest / Phyto-V
2:46 Microclots
4:20 The replication crisis in science