First And Second Recurrance of HGS Ovarian Cancer- Avastin maintenance treatment, Zejula
First recurrence of High Grade Serous Ovarian Cancer followed by chemotherapy with Taxol and Carboplatin with Avastin. Two rounds, three weeks apart. Then just Avastin every 3 weeks.
Avastin made my mouth sore, messed up my sinuses and gave me high blood pressure for which I still take metoprolol and amlopidine.
Tumor marker spiked to the 50's, Avastin was stopped, started Taxol only but tumor marker continued to rise and after 3 or four rounds Taxol was stopped.
Tumor marker reached the 200 level, but scans only show some fluid in my abdomen.
Dr. tried to get Lynparza but insurence denied it.
Zejula was approved and I took three pills a day for two months before needing a blood transfusion. Lots of bad fatigue, loss of appetite, lost another ten pounds and constipation that was hard to deal with.
I got three weeks off Zejula. Tumor marker went down to 38.
I started back on Zejula with two pills a day. The first two weeks were fine, but now I feel like I'm coming down with something, appetite is poor, did a home Covid test, which was negative. Did you know those tests are only supposed to be good for about six months? So don't stockpile them. Feel icky? Take a test. My cousin went to the doctor for what she thought was allergies and they tested her for Covid and she was positive and they kicked her out. They were so mad she went there so I guess they expect us to test ourselves.
I have enjoyed following the popularization of Stoicism by Ryan Holliday. I get the Daily Stoic email and follow his instagram. I have gotten a lot out of it. I haven't bought any of Ryan's books but I couldn't resist the little bust of Marcus Aurelius. I did buy a copy of Marcus Aurelius' meditations.
My attitude towards philosophy was ruined by a friend in college who was a philosophy major. Conversations with him pretty much consisted of him saying "Do you think this? Do you think that? Well, you're stupid." I was a science major and his contention that you couldn't really know anything didn't sit right with me, because you could investigate and test things and draw conclusions. So I would never have considered taking any class in philosophy because it sounded like it was tedious.
I wish I had discovered Stoicism a lot earlier, it might have saved me a lot of heartache over the years.
I have felt so terrible this past week I thought for sure they would not be cutting the band off yesterday. But to my surprise, my platelets had gone from 8.7 to 10. So I am feeling crummy just because.
I had a good scan Monday, so we are going to continue with my 200 mg/day Zejula and weekly Neupogen shot to keep my white cells up. I fight with fatigue and digestive troubles but I stay as active as I can. I have been in remission for over a year now. My first two remissions were only about 11 months. I was first diagnosed in 2019.
I've always paid my bills to my hospital in a timely manner.
Yet I received a letter from a collection agency that I had a debt of $1537 to MercyOne as of Jan 31 2023. It said I'd been credited with $1500 and owed the collection agency $37. So I sent a letter back asking "How?" Contacting the hospital billing has been particularly unilluminating. Apparently they changed who does the billing since the last bill I received and they were messing up before that.
Did someone who lost their job do a big "Fuck You!" on their way out? Or is the new entity, Trinity Health, screwing up even more than MercyOne did? I hope to find out.
New scan doesn't appear to show any cancer but does show hydronephrosis in my left kidney. Maybe that was the pain in my flank instead of constipation?