Author: James R. Sorenson
This report explores the complex ethical, political, psychological, and economic questions that arise from developments in medical genetics. It reviews research in applied genetics at the interface of the social and bio-medical fields, including the counseling and study of birth control, as well as the active treatment and selection of individual genetic attributes.
Author: Adam Dalton Reich
Health care costs make up nearly a fifth of U.S. gross domestic product, but health care is a peculiar thing to buy and sell. Both a scarce resource and a basic need, it involves physical and emotional vulnerability and at the same time it operates as big business. Patients have little choice but to trust those who provide them care, but even those providers confront a great deal of medical uncertainty about the services they offer. Selling Our Souls looks at the contradictions inherent in one particular health care markethospital care. Based on extensive interviews and observations across the three hospitals of one California city, the book explores the tensions embedded in the market for hospital care, how different hospitals manage these tensions, the historical trajectories driving disparities in contemporary hospital practice, and the perils and possibilities of various models of care. As Adam Reich shows, the books three featured hospitals could not be more different in background or contemporary practice. PubliCare was founded in the late nineteenth century as an almshouse in order to address the needs of the destitute. HolyCare was founded by an order of nuns in the mid-twentieth century, offering spiritual comfort to the paying patient. And GroupCare was founded in the late twentieth century to rationalize and economize care for middle-class patients and their employers. Reich explains how these legacies play out today in terms of the hospitals different responses to similar market pressures, and the varieties of care that result. Selling Our Souls is an in-depth investigation into how hospital organizations and the people who work in them make sense of and respond to the modern health care market.
Author: Cristobal Valencia
Chavistas are the local leaders and activists in Venezuelas Bolivarian Revolution, working to establish democracy through government-sponsored social missions, community self-governance, and popular collectives. We Are the State! tells the story of their grassroots activism. In perspectives gleaned from participant observation with barrio residents in workplaces, communal kitchens, city-wide forums, and grassroots meetings and assemblies, as well as family and recreational events, anthropologist Cristobal Valencia vividly recounts tensions between activists, local officials, and the wealthy opposition. The author offers an anthropological analysis of the state, social movements, and democracy as lived experiences of the poor, gendered, and racialized residents of two parishes in Caracas, Venezuela, and Afro-Venezuelan communities nearby. Ethnographic research reveals the shift in relationships of power and the evolving political practices among the Chavistas, the Chavez government, and the opposition. Examining the subjective experiences of barrio residents in everyday processes of state formation, this book provides a new perspective on the Chavistas, arguing that they are a broad-based social movement and driving force behind a revolution struggling to transfer state power to organized civil society. Through his intense engagement with the constantly changing social, political, and economic dynamics, Valencia dramatically challenges top-down understandings of the state and power in Venezuela. He shows the unequal relationships between sectors of civil society, and he shows state formation as a process enmeshed in the struggles for social justice, demonstrating that the state is a sociopolitical entity that acts through civil society, rather than above it.
Author: Joel Handler
This timely book is concerned with interactions between ordinary people and large public bureaucraciesinteractions that typically are characterized by mutual frustration and antagonism. In fact, as Joel Handler points out, the procedural guidelines intended to ensure fairness and due process fail to take account of an initial imbalance of power and tend to create adversarial rather than cooperative relationships.When the special education needs of a handicapped child must be determined, parents and school administrators often face an especially painful confrontation. The Conditions of Discretion focuses on one successful approach to educational decision making (developed by the school district of Madison, Wisconsin) in order to illustrate how such interactions can be restructured and enhanced. Madisons creative plan regards parents as part of the solution, not the problem, and uses lay advocates to turn conflict into an opportunity for communication. Arrangements such as these, in Handlers analysis, exemplify the theoretical conditions under which discretionary decisions can be made fairly and with the informed participation of all concerned.The Conditions of Discretion offers not only a detailed case study, sympathetically described, but also persuasive assessments of major themes in contemporary legal and social policyinformed consent, bureaucratic change, social movement activity, the relationship of the individual to the state. From these strands, Handler weaves a significant new theory of cooperative decision making that integrates the public and the private, recognizes the importance of values, and preserves autonomy within community. A masterful blend of social criticism, social sciences, and humane, constructive thought about the future of the welfare state. Duncan Kennedy, Harvard Law School
Author: edited by A. J. Angulo
Ignorance, or the study of ignorance, is having a moment. Ignorance plays a powerful role in shaping public opinion, channeling our politics, and even directing scholarly research. The first collection of essays to grapple with the historical interplay between education and ignorance, Miseducation finds ignoranceand its social production through naivete, passivity, and active agencyat the center of many pivotal historical developments. Ignorance allowed Americans to maintain the institution of slavery, Nazis to promote ideas of race that fomented genocide in the 1930s, and tobacco companies to downplay the dangers of cigarettes. Today, ignorance enables some to deny the fossil record and others to ignore climate science. A. J. Angulo brings together seventeen experts from across the scholarly spectrum to explore how intentional ignorance seeps into formal education. Each chapter identifies education as a critical site for advancing our still-limited understanding of what exactly ignorance is, where it comes from, and how it is diffused, maintained, and regulated in society. Miseducation also challenges the notion that schools are, ideally, unimpeachable sites of knowledge production, access, and equity. By investigating how laws, myths, national aspirations, and global relations have recast and, at times, distorted the key purposes of education, this pathbreaking book sheds light on the role of ignorance in shaping ideas, public opinion, and policy.
Author: Amadeo M. Rea
Knowledge held about animals by Pima-speaking Native Americans of Arizona and northwest Mexico is intimately entwined with their way of lifea way that is fading from memory as beavers and wolves vanish also from the Southwest. Ethnobiologist Amadeo Rea has conducted extensive fieldwork among the Northern Pimans and here shares what these people know about mammals and how mammals affect their lives. Rea describes the relationship of the River Pima, Tohono O'odham (Papago), Pima Bajo, and Mountain Pima to the furred creatures of their environment: how they are named and classified, hunted, prepared for consumption, and incorporated into myth. He also identifies associations between mammals and Piman notions of illness by establishing correlations between the geographical distribution of mammals and ideas regarding which animals do or do not cause staying sickness. This information reveals how historical and ecological factors can directly influence the belief systems of a people. At the heart of the book are detailed species accounts that relate Piman knowledge of the bats, rabbits, rodents, carnivores, and hoofed mammals in their world, encompassing creatures ranging from deer mouse to mule deer, cottontail to cougar. Rea has been careful to emphasize folk knowledge in these accounts by letting the Pimans tell their own stories about mammals, as related in transcribed conversations. This wide-reaching study encompasses an area from the Rio Yaqui to the Gila River and the Gulf of California to the Sierra Madre Occidental and incorporates knowledge that goes back three centuries. Folk Mammalogy of the Northern Pimans preserves that knowledge for scholars and Pimans alike and invites all interested readers to see natural history through another people's eyes.
Author: Vivian E. Thomson
The United States has pledged to the world community a reduction in greenhouse gas emissions by 26--28 percent below 2005 levels in 2025. Because much of this reduction must come from electric utilities, especially coal-fired power plants, coal states will make or break the U.S. commitment to emissions reduction. In Climate of Capitulation, Vivian Thomson offers an insider's account of how power is wielded in environmental policy making at the state level. Thomson, a former member of Virginia's State Air Pollution Control Board, identifies a climate of capitulation in state government -- a deeply rooted favoritism toward coal and electric utilities in states' air pollution policies.Thomson narrates three cases involving coal and air pollution from her time on the Air Board. She illuminates the overt and covert power struggles surrounding air pollution limits for a coal-fired power plant just across the Potomac from Washington, for a controversial new coal-fired electrical generation plant in coal country, and for coal dust pollution from truck traffic in a country hollow. Thomson links Virginia's climate of capitulation with campaign donations that make legislators politically indebted to coal and electric utility interests, a traditionalistic political culture tending to inertia, and a part-time legislature that depended on outside groups for information and bill drafting. Extending her analysis to fifteen other coal-dependent states, Thomson offers policy reforms aimed at mitigating the ingrained biases toward coal and electric utilities in states' air pollution policy making.
Author: By Ming Wan
Few issues in the relations between China and the West invoke as much passion as human rights. At stake, however, are much more than moral concerns and hurt national feelings. To Washington, the undemocratic nature of the Chinese government makes it ultimately suspect on all issues. To Beijing, the human rights pressure exerted by the West on China seems designed to compromise its legitimacy. As China's economic power grows and its influence on the politics of developing countries continues, an understanding of the place of human rights in China's foreign relations is crucial to the implementation of an effective international human rights agenda.In Human Rights in Chinese Foreign Relations, Ming Wan examines China's relations with the United States, Western Europe, Japan, and the United Nations human rights institutions.Wan shows that, after a decade of persistent external pressure to reform its practices, China still plays human rights diplomacy as traditional power politics and deflects pressure by mobilizing its propaganda machine to neutralize Western criticism, by making compromises that do not threaten core interests, and by offering commercial incentives to important nations to help prevent a unified Western front. Furthermore, at the UN, China has largely succeeded in rallying developing nation members to defeat Western efforts at censure.In turn, it is apparent to Wan that, while the idea of human rights matters in Western policy, it has seldom prevailed over economic considerations or concerns about national security. Western governments have not committed as many policy resources to pressuring Beijing on human rights as to other issues, and the differing degrees of commitment to human rights-related foreign policy explain why Japan, Western Europe, and the United States, in that order, have gradually retreated from confronting China on human rights issues.
Author: Andrea A. Burns
Today well over two hundred museums focusing on African American history and culture can be found throughout the United States and Canada. Many of these institutions trace their roots to the 1960s and 1970s, when the struggle for racial equality inspired a movement within the black community to make the history and culture of African America more public. This book tells the story of four of these groundbreaking museums: the DuSable Museum of African American History in Chicago (founded in 1961); the International Afro-American Museum in Detroit (1965); the Anacostia Neighborhood Museum in Washington, D.C. (1967); and the African American Museum of Philadelphia (1976). Andrea A. Burns shows how the founders of these institutions, many of whom had ties to the Black Power movement, sought to provide African Americans with a meaningful alternative to the misrepresentation or utter neglect of black history found in standard textbooks and most public history sites. Through the recovery and interpretation of artifacts, documents, and stories drawn from African American experience, they encouraged the embrace of a distinctly black identity and promoted new methods of interaction between the museum and the local community. Over time, the black museum movement induced mainstream institutions to integrate African American history and culture into their own exhibits and educational programs. This often controversial process has culminated in the creation of a National Museum of African American History and Culture, now scheduled to open in the nations capital in 2015.