Aetna is stopping its participation in the FEHB program. I'll have to enroll in another program. Researching Zejula with Blue Cross and United Healthcare is not promising. It looks like United Healthcare doesn't cover what I'm taking, and I'd pay $10,000 a month with Blue Cross. It looks like it's going to be game over.
I have enjoyed following the popularization of Stoicism by Ryan Holliday. I get the Daily Stoic email and follow his instagram. I have gotten a lot out of it. I haven't bought any of Ryan's books but I couldn't resist the little bust of Marcus Aurelius. I did buy a copy of Marcus Aurelius' meditations.
My attitude towards philosophy was ruined by a friend in college who was a philosophy major. Conversations with him pretty much consisted of him saying "Do you think this? Do you think that? Well, you're stupid." I was a science major and his contention that you couldn't really know anything didn't sit right with me, because you could investigate and test things and draw conclusions. So I would never have considered taking any class in philosophy because it sounded like it was tedious.
I wish I had discovered Stoicism a lot earlier, it might have saved me a lot of heartache over the years.
The timeline of my diagnosis and treatments.
Initial diagnosis was April 2019. Started chemotherapy immediately, taxol and carboplatin infusions every three weeks, for six rounds.
Laparoscopic hysterectomy in September 2019, High Grade Serous Ovarian cancer on both ovaries, microscopically in the Fallopian tubes. Uterus, cervix, Fallopian tubes, both ovaries and a piece of omentum were removed. Omentum had no cancer.
Two more rounds of chemotherapy with taxol and carboplatin.
Blood work and CT scans every three months in 2020. NED until last scan in November. CA125 tumor marked stayed steady at 6 or 7.
Biopsy of perirectal node showed a fluid filled sac, fluid was extracted and a piece of wall taken. Fluid and wall both were HGSOC. Node was not visible after the procedure.
Started chemo again in December 2020, taxol, carboplatin and avastin. After two rounds of this, switched to just avastin every three weeks. Scans were good and CA125 stayed 6 or 7 all through 2021.
In February of 2022, CA125 spiked to 54. Normal max is 34. Started chemotherapy with just taxol. CA125 continued to rise, as high as 200. Stopped taxol and went to oral Zejula 300 mg a day for two months. Platelets and other blood factors crashed and I had horrible fatigue unlike anything I experience before. After a blood transfusion and three weeks off from Zejula, restarted Zejula at 200 mg. It's been 4 days and so far I feel pretty good.
I go over what my symptoms were like.
Started experiencing abdominal pain early in November 2018. Then there was getting full quickly from eating and fatigue.
Finally went to the doctor before Christmas 2018, doctors ordered ultrasound. Only found fluid in my abdomen. Tried to order CT but was denied.
They sent me to a gastroenterologist, who ordered endoscopy and colonoscopy. Colonoscopy could not be performed because the sigmoid colon was too kinky. I had colonoscopies before with no problems. Gastroenterologist ordered a CT, which insurance approved.
Primary physician thought something might be going on in my uterus, sent me to oncological gynecologist. Gynecologist didn't like how my liver looked and he ordered a paracentesis. A few cancer cells of unknown origin were found. The gynecologist said he thought it's ovarian cancer.
I was referred to an oncologist, who started chemo immediately in April 2019. After six rounds, I had a hysterectomy and they did find cancer on both ovaries. It was high grade serous ovarian cancer. Oncologist said it is stage 3.
Gilda Radner went to many doctors complaining about not feeling well. By the time she was correctly diagnosed, it was too late. There have been many advances since the 70's and ovarian cancer is less of a death sentence than a chronic condition.
If things don't feel right, see your doctor. The symptoms for me were changes in my bowel habits, bloating, abdominal pain, weight loss and fatigue. I also had shortness of breath from the ascites.
Had a bone mineral analysis today and got a diagnosis of osteoporosis and a prescription for Alendronate, which is Fosamax, 70 mg once a week. I had a bone scan years ago and they diagnosed osteopenia then, so this isn't much of a surprise, especially after going through chemo. Also having problems with nausea (from taking Zejula) in the last week. I'll be discussing these things at my appointment at the cancer center tomorrow after they do my blood draw.
My first go round with chemotherapy. Eight rounds total of taxol and carboplatin from April 2019 to Dec 2019.
Oh, and after round 3, I got shingles. A big old pile of weepy blisters covering my left breast. I was given an antiviral and some prednisone and hydrocodone. I didn't use much of the hydrocodone, so I guess I got off easy as far as pain goes.
I also forgot to mention urinary incontinence, I started having trouble holding it when I would get up to go to the bathroom. the first time it spotted my underwear a bit, but didn't soak through to my jeans. But later it got worse. I started wearing always pads when I went for chemo and it seemed to clear up after a couple of days. I did wet the bed at home once or twice. I didn't know if it was one of the meds or maybe there was cancer impinging on something. I never mentioned it and asked about it.
It never happened again in subsequent treatments. But I wear pads just in case.
Lucky for you I forgot all that or that video would have been longer. I'd like to keep them all at 5 minutes if I can.
As for the thumbnail, I am not doing a Mary Catherine Gallagher. What is your 2D:4D ration? Is your ring finger longer than your pointer finger? You are either a man or a lesbian. It's science.